Nero Note #6- Gillain Barre Syndrome
For this neuro note, I picked a story from the GBS/CIDP foundation website about a patient named Ariana. The story talked about how Ariana's diagnosis was inconclusive for a while until she became the first known child with Guillain Barre Syndrome (GBS) in Gibraltar. In the story, it talks about some of the treatment she had been given to alleviate some of her pain and the process her parents have been going through to support their child. Ariana is not her parents only child and so in the story it talks about how her parents want to be there for Ariana but not neglect their other children through this challenging time. i chose this resource because I never knew much about GBS and I thought it would be insightful to hear people's personal stories who have GBS.
In regards to our course content, I learned a little more about the kinds of treatment options that could be given for pain related to Ariana's diagnosis. I also learned about the importance of support, which we talk a lot about in class. I recommend this resource to others not for learning more about GBS, but to learn more about the importance of a supportive family in this kind of situation. The story talks about how Ariana's parents played music for her one night in the hospital and Ariana got to act like a kid again. They know how important it is to be there for Ariana but to also think about their other children in the family. Here is the link to the story: https://www.gbs-cidp.org/patient-stories/ariana/
References
Ariana. GBS/CIDP Foundation International. https://www.gbs-cidp.org/patient-stories/ariana/
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